Thursday, June 9, 2011

The Health Data Initiative Forum 2011

See the Health Datapalooza 2014!

The IOM and HHS hosted The Health Data Initiative Forum on Thursday, June 9, 2011 to accelerate momentum for the public use of data and innovation to improve health. The Forum built on the success of The Community Health Data Initiative Forum: Harnessing the Power of Information to Improve Health, held in June 2010, and included a number of fast-paced demonstrations that presented a range of tools and applications developed using health data, a series of discussion sessions, and a data and apps exposition where participants interacted with featured innovators, learn more about available data, and identify opportunities to expand upon current efforts. The sessions were also webcast at

Participating speakers included:
  • Aneesh Chopra, chief technology officer of the United States
  • Harvey Fineberg, president, Institute of Medicine
  • Lisa Jackson, administrator, U.S. Environmental Protection Agency
  • Timothy O’Reilly, chief executive officer, O’Reilly Media
  • Todd Park, chief technology officer, U.S. Department of Health and Human Services
  • Kathleen Sebelius, secretary, U.S. Department of Health and Human Services

Below are the slides (in Flash format) from the morning session of the Health Data Initiative Forum held on June 9, 2011.

Download HERE

These are the morning presenters:

Healthagen (iTriage)
Co-founded by two emergency physicians, Healthagen is the software development company for iTriage, a free, consumer-based healthcare application that is a game-changer in healthcare. The comprehensive iTriage database includes information on thousands of symptoms, diseases, procedures and medications and combines that knowledge with a nationwide directory of every hospital, urgent care, retail clinic, physician, pharmacy and government health center. The proprietary Symptom-to-Provider™ pathway allows users to search symptoms, find possible causes, and be led to the most appropriate provider for a specific condition. Once the end-user selects a provider, the user can find information on ER Wait Times, pre-register for an ER visit (being piloted in select facilities), and access detailed information about that provider’s specialties and credentials. iTriage is truly a one-stop shop for consumer healthcare information.
Aetna / Medicity
Aetna is one of the nation’s largest healthcare companies with over 3,000 nurses, social workers, and behavioral health specialists, and covers over 18 million medical members across the United States.  Aetna is focused on delivering technology and care management solutions that provide greater value to our customers and meet the needs of the emerging ACO market.  Working with our subsidiary, Medicity, and accessing HHS data, we created several new applications that showcase how information can be used to build a more personalized experience that can lead to improved health outcomes. Our use cases highlight both clinicians working from a call center to provide disease management and other services, and primary care/specialty physicians that see and treat patients on a daily basis.  
Ozioma,, is a new online tool designed to increase the amount of locally-relevant health information in communities through media.  Ozioma allows users to search for health data from HHS (e.g., National Cancer Institute and Centers for Disease Control and Prevention) and more than 60 other reliable sources—all in one place. Search results are presented as easy-to-understand sentences crafted by a team of communication and public health experts, which can be immediately included in press releases, news stories, blogs, reports, grants or policy briefs. Greater access to locally relevant data will help in building healthier communities.
Healthline SPG - Surgical Procedure Guide
Healthline Networks has created comprehensive, data-rich online learning environments to help consumers research and make informed decisions about serious surgical procedures. Leveraging Healthline’s Medically Guided™ semantic search, we have incorporated CMS and FDA data to enhance Healthline’s rich information resources and present consumers with the most comprehensive online surgical procedure resource available today. Healthline Surgical Procedure Guides (SPG) analyze and interpret MedPar data to help consumers understand what events and incurred charges they can expect throughout each stage of the patient pathway—from preparation, to surgery, through recovery and rehabilitation. To personalize this experience, the data is immediately localized based on the user’s zip code. SPG also applies algorithms that process and summarize Hospital Compare data to provide consumers with “quick scores” that rank performance and charge trends for their hospitals against local, state, and national averages. FDA news and alerts for contextually relevant procedure data complement Healthline’s reference and education materials. SPG is the newest offering in Healthline’s suite of products that reach more than 100M consumers each month when they are searching for credible health information.
PatientsLikeMe – Clinical Trials
PatientsLikeMe will present a new feature that helps patients find clinical trials that are right for them and helps companies find patients who are right for their trial.  The feature, which updates daily with all of information reported on, allows members of the website to see every clinical trial they are interested in or eligible for based on the conditions and location they report. Investigators can also find their trial listed on PatientsLikeMe and see eligible patients, or search for patients that match their criteria.  Companies, nonprofits, and academics that use PatientsLikeMe for trial recruitment can now also purchase enhanced listings that message eligible patients anonymously through the site’s private system. PatientsLikeMe aims to make trial enrollment faster, more efficient, and ensure patients know and have access to the opportunity to contribute to research.
Maestro (Lumeris)
The Essence Group, through Lumeris, is the nation’s first full-service enabler of next-generation accountable health care delivery systems.  Maestro, from Lumeris, is powerful software that allows health plans, hospitals, medical groups, and individual physicians to find and confidently act on opportunities to improve the quality and lower the cost of health care.  In addition to lending credible context to clinical and financial data, this web-based software supports greater collaboration between the payers and providers of health care.
MAYA Food Oasis
Initially developed at a Health 2.0 Code-a-thon, MAYA Food Oasis is an SMS-based virtual grocery marketplace intended to expand access to healthy, affordable food. To order food, consumers send a simple text message to the central system requesting specific items. Suppliers can review the individual orders, aggregate them into economically viable groups, and negotiate with buyers about price and quantity. Then, suppliers deliver the grouped orders to existing community locations like libraries, schools, or churches. The system provides an easy-to-use and dynamic marketplace that improves access for consumers and expands the market for suppliers. While the system is purposefully designed to have a positive impact on consumers trapped in a food desert, it could also improve access to healthy food for a wide section of the community.
Asthmapolis has developed a set of tools to capture data about the real time burden of asthma in communities. Visitors to our exhibit in the Data and Apps Expo can explore some of the medication sensors we’ve built to track the time and location where asthma inhalers are used. In addition, we will highlight the interfaces and mobile applications we’ve developed to help patients, physicians, and public health officials put this information to work to improve the management and control of asthma. We will also provide several case studies to illustrate how the technology is being applied in different settings to help identify patients with uncontrolled asthma, to wirelessly monitor and encourage adherence with preventive medications, and to track the health effects of specific environmental exposures.
Multistate Foodborne Disease Outbreak Investigation System
The Multistate Foodborne Disease Outbreak Investigation System (FDOIS) is a collaboration between the CDC and Palantir Technologies that enables the CDC and its state, local and partner agencies to work together on investigations of disease outbreaks. The CDC facilitated the initial pilot program to address a major gap in multistate foodborne disease outbreak investigation methods: the lack of an electronic system to integrate key data sources and facilitate secure information sharing between public health partners while maintaining patient privacy. The FDOIS rapidly joins disparate data sets, including epidemiologic and laboratory data, into a single environment for partners across organizations to collaboratively analyze. The result is more rapid hypothesis generation and testing that translates into actions to reduce the public’s risk. A “proof of concept” system is currently deployed at the CDC as well as six state health departments with plans to roll out further to federal partners in the next several months. Broadly, the system represents an “all hazards” solution, meaning the systems developed in this framework are applicable and adaptable to programs across CDC.
ElizaLIVE is a multi-modal engagement platform that brings understanding of healthcare data to a whole new level. ElizaLIVE combines data from proprietary outreach on hundreds of millions of individual conversations about health care, taking in interactions from web click streams, email, and automated phone conversations powered by Eliza’s proprietary speech recognition engine. ElizaLIVE weaves this data with clinical data, third-party, and publically-available data to better understand healthcare consumers and create multi-dimensional profiles including socio-demographic, clinical, and behavioral inputs. ElizaLIVE’s proprietary score predicts how people will behave, specifically assigning individuals a number on a 10 point scale that predicts how they will respond to attempted interventions that would improve care and lower costs.  It is not enough to stratify a population by how much they are likely to cost; ElizaLIVE shows whether individual members are likely to respond to an intervention, while creating meaningful interventions, communications strategies, and programs that increase compliance and lower costs.

Below are the slides (in Flash format) from the Apps Demonstration Session A.

Download HERE

These are the session A presenters:

Doximity is a physician network that links medical professionals over mobile devices and the web, enabling them to deliver faster, smarter treatment.  Its secure platform enables the physicians to find fax numbers, phone numbers, insurance information, clinical interests, and languages spoken; exchange private phone lists, back lines, and pagers, as well as send HIPAA-compliant messages to colleagues; connect with former classmates and residents; and access phone numbers of pharmacies, hospitals, and labs.  To help medical professionals find the information they need quickly, Doximity pre-populates its national directory with practice information from the National Provider Identifier, Medicare, PubMed and other HHS databases.
Castlight Health 
Castlight Health’s application enables true health care consumerism by integrating and personalizing the critical information for value-based health care decision making. Castlight users see out-of-pocket, service-level costs combined with the best available information on clinical quality and patient satisfaction. Castlight’s data is created from a variety of commercial and public sources, including CMS, HCAHPS, and AHRQ. Castlight’s proprietary educational program provides consumer-friendly guidance on health care costs, provider selection, and evidence-based care. Castlight Health was founded in 2008 and is based in San Francisco, CA.
Daily Challenge 
MeYou Health’s Daily Challenge emails you one small thing to do each day to improve your well-being. In just nine months, this Facebook-enabled web application has enrolled over 105,000 users who have completed over 1 million challenges. In the course of exploring well-being, members are invited to get their well-being score using the Well-Being Tracker (an assessment tool derived from the Gallup-Healthways Well-Being Index).  To date, over 50,000 people have completed the Tracker to get their personal well-being score. By combining well-being scores with social relationship data, MeYou Health enables its users to compare their score to the average score of their friends. Working with our partner, MedNetworks (founded by “Connected” author Nicholas Christakis, MD, PhD), we are mapping this unique social well-being data set to ultimately understand if well-being is contagious and how we might promote its diffusion across social systems.
Treatment Pathways – Thomson Reuters
Thomson Reuters MarketScan® Treatment Pathways facilitates faster and smarter healthcare research by overlaying an analytic interface onto robust patient level databases. This online research tool supports cross-sectional and longitudinal analyses, descriptive reporting, iterative exploratory research, and quick querying, so studies or portions of study work can be quickly and easily completed without the need for data intake, software, or custom programming. Data are hosted on a Thomson Reuters cloud, which users access through a web-interface.  For more information, please
Practice Fusion Practice Fusion provides a free, web-based Electronic Medical Record (EMR) system to physicians. With charting, scheduling, e-prescribing, billing, lab integrations, unlimited support, and a Personal Health Record for patients, Practice Fusion’s EMR addresses the complex needs of today’s healthcare providers and disrupts the health IT status quo. Practice Fusion is the fastest growing EMR community in the country with more than 90,000 users serving 13 million patients. When pairing our structured, clinical data with the vast number of patient records in our system, the possibilities for research and development are endless. That is why Practice Fusion is opening our API to allow developers to utilize the data across our web-based platform. Practice Fusion’s API for EMR is a first step toward future medical record interoperability, creating opportunities for seamless communication with hospitals, medical groups, patient platforms, and more.
Global Health Data Exchange 
The Global Health Data Exchange (GHDx) is a new data catalog for demographic, public health, and global health data. It was developed by the Institute for Health Metrics and Evaluation (IHME) at the University of Washington to address a key issue for global and public health analysis, which is a lack of knowledge about data and access to data. The GHDx is the first—and currently the only—data catalog that focuses on health-related data on a global scale. We will make every effort to build the broadest and most in-depth data catalog, and aim to be the go-to source for information about data for researchers, analysts, policy makers, and others in the global health space. The GHDx improves data discoverability by providing a user-friendly, validated, and searchable data catalog for global health, demographic, and other health-related datasets, including censuses, surveys, health records, vital statistics, and administrative data. The GHDx also aims at improving access to data by serving as a platform for data owners to share their data with the public. All of IHME’s search results are available for download, and IHME invites others to distribute their data through the GHDx. 
Direct Relief International is a California-based, nonprofit organization founded in 1948 to improve the quality of life for people affected by poverty, disaster, and civil unrest at home and throughout the world.  Direct Relief provides essential material resources—medicine, supplies, and equipment—to over 70 countries globally and throughout the United States. Direct Relief receives medicines and medical products from more than 100 healthcare manufacturers, who collectively donate approximately $250 million (wholesale) worth of pharmaceuticals and supplies annually. Direct Relief launched to empower people by providing access to important health data through an intuitive and powerful web-based interface.  Users can search, analyze, and understand a variety of federal, state, and local government data, as well as Direct Relief’s own data. Key variables have been hyperlinked to facilitate search and analysis across datasets.  The goal of the site is to deepen insight, improve efficiencies, and facilitate interaction to improve health.
MedVentive Population Manager and Risk Manager 
Through our early roots combined with our work with Provider and Payer clients today, MedVentive brings unparalleled experience and expertise built from the physician perspective to support population and risk management.  We provide two core products that support interrelated business requirements for Clinical Integration, Medical Home, and Accountable Care initiatives.  MedVentive Population Manager is an enterprise population management platform.  MedVentive Risk Manager provides the capabilities providers need to be successful under risk or value-based contracts with payers and/or employers.  Most importantly, we take data beyond generalized reporting and identify actionable opportunities, then provide the tools, workflows, and detail to empower clinicians to improve the coordination and quality of care in our clients’ networks.
Community Commons / Advancing the Movement 
Via, registered users will have free access to over 7,000 GIS data layers at state, county, zip code, block group, tract, and point-levels; contextualized mapping, visualization, analytic, impact and communication tools and apps; searchable profiles of over 1,000 place-based community initiatives working toward healthy/sustainable/livable communities—funded by government and private philanthropy—complete with text and video narratives on "what’s working." Peer learning forums in the “interactive commons” with colleagues exploring similar interests and challenges—hosted by leading national TA providers. Inspired by Advancing the Movement, is a democratized learning and innovation platform for enhancing the reach and impact of distributed action for a healthier, more equitable, and prosperous United States of America.

Below are the slides (in Flash format) from the Apps Demonstration Session B.

Download HERE

These are the Session B presenters:

Network of Care for Healthy Communities 
Brought to you through the National Association of County Officers and the National Association of County Health Officers, the Network of Care for Healthy Communities is a delivery platform for community stakeholders and citizens. For stakeholders, the platform consolidates and presents data from and other sources tied to actionable content, including promising practices, local resources, progress trackers, and collaboration centers. By adopting the platform locally, communities can meet PHAB accreditation requirements, track progress to Healthy People 2020 goals, conduct needs assessments, and collaborate to promote change. For citizens, the platform provides a health encyclopedia, directories of services and supports care coordination, distance learning, and includes a secure health record that is compliant with open standards.  This demonstration will showcase the power of making centrally provided health data locally relevant while providing individuals with the tools they need to improve both their health.
Nearly half of all Americans currently take a prescription drug, yet the public remains largely unaware of medication safety concerns. While the Food and Drug Administration (FDA) regularly issues alerts on drug problems, many consumers become aware of problems with drugs from unofficial sources. The present structure highlights an important information gap between government and the public that has persisted for decades.  We attempt to improve the drug safety process through the MedWatcher application for mobile phones (currently available for the iPhone and iPad). The app is designed to engage users (both the public and healthcare practitioners) in issues of drug safety, providing both current safety advisories and a reporting tool for direct submission of adverse drug events by the user.  Developed in collaboration with the FDA, the system will be designed to generate intelligence about candidate medication risks, especially for widely prescribed medicines. These data have the potential to have tremendous public health value by augmenting traditional drug surveillance efforts while also being of major interest to pharmaceutical companies, medical device makers, pharmacies and benefit payers. application platform is the leading cloud platform for business apps.  With security, reliability, and privacy that enable HIPAA compliant applications, it also excels at health apps. Every business needs apps: HR apps, inventory apps, iPhone, iPad, Android, and BlackBerry apps. Some require aggregating data from other systems, some generate their own data. enables both.
Now you can use the platform to build all of your apps—and websites—quickly and easily. Over 200,000 apps have already been built.  And with a robust program to help partners to be successful, our Technical Enablement and Independent Software Vendor teams make it easier than ever.
Improvement Portal – Press Ganey
The Improvement Portal, Press Ganey’s innovative online performance dashboard, provides an integrated view of a provider organization's total performance so they can target their improvement efforts and get results faster.  The Improvement Portal enables provider organizations to gain real-time insight into current performance, provides immediate access to improvement resources and networking and aligns your organization around performance priorities in the areas of clinical, financial, operational and patient experience performance.  And the Improvement Portal can work in two modes—it can utilize a provider’s own institutional data, or it can utilize public data such as MEDPAR and data to produce the improvement opportunities. Whether leveraging the intuitive performance chart or the more comprehensive performance dashboards, it takes only a matter of seconds to pinpoint where the provider stands against other practices or facilities on key performance measures, all with one goal in mind: becoming a High Performance organization.
Humedica is a next-generation clinical informatics company that provides novel analytics solutions to the health care industry.  Humedica integrates clinical, financial, and administrative data from disparate IT systems and then applies advanced analytics to define appropriate patient cohorts, treatment pathways, outcomes, and associated costs.  Humedica  MinedShare® can transform a provider organization’s immense reservoir of data into valuable, actionable knowledge, all within a state-of-the-art, HIPAA-compliant, and highly secure environment.
SAP and Digital Infuzion 
This demonstration will leverage SAP Business Objects to make health and disease related information more accessible and interactive for community and resource planners.  In addition, our solutions will provide the health consumer with a greater understanding of health resources in their area. The long-term goal is to allow doctors and patients with the capability to view health, service, and disease-related data and make comparisons across different doctors and providers.  We envision public data sources like the Area Resource File from HRSA to provide the framework for additional visibility for each person in need of greater health transparency.
MedlinePlus Connect 
MedlinePlus Connect,, is an award-winning, free service of the National Library of Medicine (NLM) and the National Institutes of Health (NIH) that easily links patient portals and EHR systems to, an authoritative, up-to-date health information resource for patients, families, and health care providers. MedlinePlus Connect provides context-relevant responses for problems and diagnoses, medications, and lab tests. MedlinePlus Connect supports the HL7 Context-Aware Knowledge Retrieval (Infobutton) standard and accepts requests containing standardized code sets already used by EHRs. It is available as a web application and as a web service.
Some of the health care challenges this country faces cannot be solved by opening existing data.  They require entirely new data sets. The National Library of Medicine (NLM), Food and Drug Administration (FDA), and pharmaceutical industry are meeting this challenge by creating the largest, highest-quality data set of medication images that has ever been available. The NLM and FDA’s ground-breaking Pillbox Initiative already gives developers direct access via API to previously hard-to-reach government drug identification and reference data in drug labels. Now it will add standardized high-quality drug images for prescription, over-the-counter, homeopathic, and veterinary medications. More than a single application, the Pillbox Initiative is a platform for innovation, giving developers an all-access pass to federal pharmaceutical data and creating a sustainable ecosystem of high-quality medication images. Pillbox’s project manager will outline the recently-announced government/industry partnership, highlight the data, images, and services created and exposed through this patient-safety initiative, demonstrate the API, and showcase mobile, tablet, and web applications developed with this resource.

Below are the slides (in Flash format) from the Apps Demonstration Session C.

Download HERE

These are the Session C presenters:

Esri / Community Analyst 
Community Analyst is a cloud-based application that provides seamless access to detailed data about communities, including socio-demographics (Census), lifestyle segmentation (Esri), business data (Esri) and health status indicators such as access to care, use of preventive health services, and premature death risk factors (HHS). These data about community demographics, health behaviors and outcomes can be quickly analyzed, visualized, and shared as stunning, smart maps!  Community Analyst provides neighborhood-level views and generates detailed reports and interactive color-coded maps. Integration of additional datasets from, a free data and map exchange provides access to thousands of additional data and maps providing insights about communities. HDI Forum attendees will be able to sign up for a free trial subscription of Community Analyst as well as download other free health relevant  smart  phone applications such as My Place History (environmental health) and Business Analyst (lifestyle behavior) smart phone applications at the Data and Apps Expo. 
Robert Wood Johnson Foundation Childhood Obesity GIS is an online, place-based information and collaboration system sponsored by the Robert Wood Johnson Foundation (RWJF) to provide interactive tools for RWJF grantees, Major Program Offices, and community partners working toward preventing childhood obesity.  The Center for Applied Research and Environmental Systems (CARES) at the University of Missouri developed and implemented this unique multi-dimensional system by combining highly intuitive interactive maps and custom dynamic reports, with the ability to upload and overlay local and regional data with over 7,000 of national-source data sets. The system also provides peer-learning spaces for grantees to learn from each other about how they are reversing childhood obesity in their communities.
As a national leader in financing neighborhood revitalization, The Reinvestment Fund has long recognized that information drives change in all sectors: public, private, and civic—and that getting that information has not always been simple or efficient. With that in mind, TRF developed a national data warehouse and mapping tool——to provide users with simple, online access to data, tables, charts, reports and maps in a sophisticated, user-friendly web platform. PolicyMap users can not only view data and maps online, they can also download and export from our platform, as well as upload their own data to share with others. Development of this tool is rooted in TRF’s belief that good data drives good investment decisions.


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