See the Health Datapalooza 2014!
The IOM and HHS hosted The Health Data Initiative Forum on Thursday, June 9, 2011 to accelerate momentum for the public use of data and innovation to improve health. The Forum built on the success of The Community Health Data Initiative Forum: Harnessing the Power of Information to Improve Health, held in June 2010, and included a number of fast-paced demonstrations that presented a range of tools and applications developed using health data, a series of discussion sessions, and a data and apps exposition where participants interacted with featured innovators, learn more about available data, and identify opportunities to expand upon current efforts. The sessions were also webcast at http://www.hhs.gov/liveParticipating speakers included:
- Aneesh Chopra, chief technology officer of the United States
- Harvey Fineberg, president, Institute of Medicine
- Lisa Jackson, administrator, U.S. Environmental Protection Agency
- Timothy O’Reilly, chief executive officer, O’Reilly Media
- Todd Park, chief technology officer, U.S. Department of Health and Human Services
- Kathleen Sebelius, secretary, U.S. Department of Health and Human Services
Below are the slides (in Flash format) from the morning session of the Health Data Initiative Forum held on June 9, 2011.
Download HERE
These are the morning presenters:
Healthagen (iTriage)
Co-founded by two emergency physicians, Healthagen is the software development company for iTriage, a free, consumer-based healthcare application that is a game-changer in healthcare. The comprehensive iTriage database includes information on thousands of symptoms, diseases, procedures and medications and combines that knowledge with a nationwide directory of every hospital, urgent care, retail clinic, physician, pharmacy and government health center. The proprietary Symptom-to-Provider™ pathway allows users to search symptoms, find possible causes, and be led to the most appropriate provider for a specific condition. Once the end-user selects a provider, the user can find information on ER Wait Times, pre-register for an ER visit (being piloted in select facilities), and access detailed information about that provider’s specialties and credentials. iTriage is truly a one-stop shop for consumer healthcare information.
Co-founded by two emergency physicians, Healthagen is the software development company for iTriage, a free, consumer-based healthcare application that is a game-changer in healthcare. The comprehensive iTriage database includes information on thousands of symptoms, diseases, procedures and medications and combines that knowledge with a nationwide directory of every hospital, urgent care, retail clinic, physician, pharmacy and government health center. The proprietary Symptom-to-Provider™ pathway allows users to search symptoms, find possible causes, and be led to the most appropriate provider for a specific condition. Once the end-user selects a provider, the user can find information on ER Wait Times, pre-register for an ER visit (being piloted in select facilities), and access detailed information about that provider’s specialties and credentials. iTriage is truly a one-stop shop for consumer healthcare information.
Aetna / Medicity
Aetna is one of the nation’s largest healthcare companies with over 3,000 nurses, social workers, and behavioral health specialists, and covers over 18 million medical members across the United States. Aetna is focused on delivering technology and care management solutions that provide greater value to our customers and meet the needs of the emerging ACO market. Working with our subsidiary, Medicity, and accessing HHS data, we created several new applications that showcase how information can be used to build a more personalized experience that can lead to improved health outcomes. Our use cases highlight both clinicians working from a call center to provide disease management and other services, and primary care/specialty physicians that see and treat patients on a daily basis.
Aetna is one of the nation’s largest healthcare companies with over 3,000 nurses, social workers, and behavioral health specialists, and covers over 18 million medical members across the United States. Aetna is focused on delivering technology and care management solutions that provide greater value to our customers and meet the needs of the emerging ACO market. Working with our subsidiary, Medicity, and accessing HHS data, we created several new applications that showcase how information can be used to build a more personalized experience that can lead to improved health outcomes. Our use cases highlight both clinicians working from a call center to provide disease management and other services, and primary care/specialty physicians that see and treat patients on a daily basis.
Ozioma
Ozioma, www.localhealthdata.org, is a new online tool designed to increase the amount of locally-relevant health information in communities through media. Ozioma allows users to search for health data from HHS (e.g., National Cancer Institute and Centers for Disease Control and Prevention) and more than 60 other reliable sources—all in one place. Search results are presented as easy-to-understand sentences crafted by a team of communication and public health experts, which can be immediately included in press releases, news stories, blogs, reports, grants or policy briefs. Greater access to locally relevant data will help in building healthier communities.
Ozioma, www.localhealthdata.org, is a new online tool designed to increase the amount of locally-relevant health information in communities through media. Ozioma allows users to search for health data from HHS (e.g., National Cancer Institute and Centers for Disease Control and Prevention) and more than 60 other reliable sources—all in one place. Search results are presented as easy-to-understand sentences crafted by a team of communication and public health experts, which can be immediately included in press releases, news stories, blogs, reports, grants or policy briefs. Greater access to locally relevant data will help in building healthier communities.
Healthline SPG - Surgical Procedure Guide
Healthline Networks has created comprehensive, data-rich online learning environments to help consumers research and make informed decisions about serious surgical procedures. Leveraging Healthline’s Medically Guided™ semantic search, we have incorporated CMS and FDA data to enhance Healthline’s rich information resources and present consumers with the most comprehensive online surgical procedure resource available today. Healthline Surgical Procedure Guides (SPG) analyze and interpret MedPar data to help consumers understand what events and incurred charges they can expect throughout each stage of the patient pathway—from preparation, to surgery, through recovery and rehabilitation. To personalize this experience, the data is immediately localized based on the user’s zip code. SPG also applies algorithms that process and summarize Hospital Compare data to provide consumers with “quick scores” that rank performance and charge trends for their hospitals against local, state, and national averages. FDA news and alerts for contextually relevant procedure data complement Healthline’s reference and education materials. SPG is the newest offering in Healthline’s suite of products that reach more than 100M consumers each month when they are searching for credible health information.
Healthline Networks has created comprehensive, data-rich online learning environments to help consumers research and make informed decisions about serious surgical procedures. Leveraging Healthline’s Medically Guided™ semantic search, we have incorporated CMS and FDA data to enhance Healthline’s rich information resources and present consumers with the most comprehensive online surgical procedure resource available today. Healthline Surgical Procedure Guides (SPG) analyze and interpret MedPar data to help consumers understand what events and incurred charges they can expect throughout each stage of the patient pathway—from preparation, to surgery, through recovery and rehabilitation. To personalize this experience, the data is immediately localized based on the user’s zip code. SPG also applies algorithms that process and summarize Hospital Compare data to provide consumers with “quick scores” that rank performance and charge trends for their hospitals against local, state, and national averages. FDA news and alerts for contextually relevant procedure data complement Healthline’s reference and education materials. SPG is the newest offering in Healthline’s suite of products that reach more than 100M consumers each month when they are searching for credible health information.
PatientsLikeMe – Clinical Trials
PatientsLikeMe will present a new feature that helps patients find clinical trials that are right for them and helps companies find patients who are right for their trial. The feature, which updates daily with all of information reported on ClinicalTrial.gov, allows members of the website to see every clinical trial they are interested in or eligible for based on the conditions and location they report. Investigators can also find their trial listed on PatientsLikeMe and see eligible patients, or search for patients that match their criteria. Companies, nonprofits, and academics that use PatientsLikeMe for trial recruitment can now also purchase enhanced listings that message eligible patients anonymously through the site’s private system. PatientsLikeMe aims to make trial enrollment faster, more efficient, and ensure patients know and have access to the opportunity to contribute to research.
PatientsLikeMe will present a new feature that helps patients find clinical trials that are right for them and helps companies find patients who are right for their trial. The feature, which updates daily with all of information reported on ClinicalTrial.gov, allows members of the website to see every clinical trial they are interested in or eligible for based on the conditions and location they report. Investigators can also find their trial listed on PatientsLikeMe and see eligible patients, or search for patients that match their criteria. Companies, nonprofits, and academics that use PatientsLikeMe for trial recruitment can now also purchase enhanced listings that message eligible patients anonymously through the site’s private system. PatientsLikeMe aims to make trial enrollment faster, more efficient, and ensure patients know and have access to the opportunity to contribute to research.
Maestro (Lumeris)
The Essence Group, through Lumeris, is the nation’s first full-service enabler of next-generation accountable health care delivery systems. Maestro, from Lumeris, is powerful software that allows health plans, hospitals, medical groups, and individual physicians to find and confidently act on opportunities to improve the quality and lower the cost of health care. In addition to lending credible context to clinical and financial data, this web-based software supports greater collaboration between the payers and providers of health care.
The Essence Group, through Lumeris, is the nation’s first full-service enabler of next-generation accountable health care delivery systems. Maestro, from Lumeris, is powerful software that allows health plans, hospitals, medical groups, and individual physicians to find and confidently act on opportunities to improve the quality and lower the cost of health care. In addition to lending credible context to clinical and financial data, this web-based software supports greater collaboration between the payers and providers of health care.
MAYA Food Oasis
Initially developed at a Health 2.0 Code-a-thon, MAYA Food Oasis is an SMS-based virtual grocery marketplace intended to expand access to healthy, affordable food. To order food, consumers send a simple text message to the central system requesting specific items. Suppliers can review the individual orders, aggregate them into economically viable groups, and negotiate with buyers about price and quantity. Then, suppliers deliver the grouped orders to existing community locations like libraries, schools, or churches. The system provides an easy-to-use and dynamic marketplace that improves access for consumers and expands the market for suppliers. While the system is purposefully designed to have a positive impact on consumers trapped in a food desert, it could also improve access to healthy food for a wide section of the community.
Initially developed at a Health 2.0 Code-a-thon, MAYA Food Oasis is an SMS-based virtual grocery marketplace intended to expand access to healthy, affordable food. To order food, consumers send a simple text message to the central system requesting specific items. Suppliers can review the individual orders, aggregate them into economically viable groups, and negotiate with buyers about price and quantity. Then, suppliers deliver the grouped orders to existing community locations like libraries, schools, or churches. The system provides an easy-to-use and dynamic marketplace that improves access for consumers and expands the market for suppliers. While the system is purposefully designed to have a positive impact on consumers trapped in a food desert, it could also improve access to healthy food for a wide section of the community.
Asthmapolis
Asthmapolis has developed a set of tools to capture data about the real time burden of asthma in communities. Visitors to our exhibit in the Data and Apps Expo can explore some of the medication sensors we’ve built to track the time and location where asthma inhalers are used. In addition, we will highlight the interfaces and mobile applications we’ve developed to help patients, physicians, and public health officials put this information to work to improve the management and control of asthma. We will also provide several case studies to illustrate how the technology is being applied in different settings to help identify patients with uncontrolled asthma, to wirelessly monitor and encourage adherence with preventive medications, and to track the health effects of specific environmental exposures.
Asthmapolis has developed a set of tools to capture data about the real time burden of asthma in communities. Visitors to our exhibit in the Data and Apps Expo can explore some of the medication sensors we’ve built to track the time and location where asthma inhalers are used. In addition, we will highlight the interfaces and mobile applications we’ve developed to help patients, physicians, and public health officials put this information to work to improve the management and control of asthma. We will also provide several case studies to illustrate how the technology is being applied in different settings to help identify patients with uncontrolled asthma, to wirelessly monitor and encourage adherence with preventive medications, and to track the health effects of specific environmental exposures.
Multistate Foodborne Disease Outbreak Investigation System
The Multistate Foodborne Disease Outbreak Investigation System (FDOIS) is a collaboration between the CDC and Palantir Technologies that enables the CDC and its state, local and partner agencies to work together on investigations of disease outbreaks. The CDC facilitated the initial pilot program to address a major gap in multistate foodborne disease outbreak investigation methods: the lack of an electronic system to integrate key data sources and facilitate secure information sharing between public health partners while maintaining patient privacy. The FDOIS rapidly joins disparate data sets, including epidemiologic and laboratory data, into a single environment for partners across organizations to collaboratively analyze. The result is more rapid hypothesis generation and testing that translates into actions to reduce the public’s risk. A “proof of concept” system is currently deployed at the CDC as well as six state health departments with plans to roll out further to federal partners in the next several months. Broadly, the system represents an “all hazards” solution, meaning the systems developed in this framework are applicable and adaptable to programs across CDC.
The Multistate Foodborne Disease Outbreak Investigation System (FDOIS) is a collaboration between the CDC and Palantir Technologies that enables the CDC and its state, local and partner agencies to work together on investigations of disease outbreaks. The CDC facilitated the initial pilot program to address a major gap in multistate foodborne disease outbreak investigation methods: the lack of an electronic system to integrate key data sources and facilitate secure information sharing between public health partners while maintaining patient privacy. The FDOIS rapidly joins disparate data sets, including epidemiologic and laboratory data, into a single environment for partners across organizations to collaboratively analyze. The result is more rapid hypothesis generation and testing that translates into actions to reduce the public’s risk. A “proof of concept” system is currently deployed at the CDC as well as six state health departments with plans to roll out further to federal partners in the next several months. Broadly, the system represents an “all hazards” solution, meaning the systems developed in this framework are applicable and adaptable to programs across CDC.
ElizaLIVE
ElizaLIVE is a multi-modal engagement platform that brings understanding of healthcare data to a whole new level. ElizaLIVE combines data from proprietary outreach on hundreds of millions of individual conversations about health care, taking in interactions from web click streams, email, and automated phone conversations powered by Eliza’s proprietary speech recognition engine. ElizaLIVE weaves this data with clinical data, third-party, and publically-available data to better understand healthcare consumers and create multi-dimensional profiles including socio-demographic, clinical, and behavioral inputs. ElizaLIVE’s proprietary score predicts how people will behave, specifically assigning individuals a number on a 10 point scale that predicts how they will respond to attempted interventions that would improve care and lower costs. It is not enough to stratify a population by how much they are likely to cost; ElizaLIVE shows whether individual members are likely to respond to an intervention, while creating meaningful interventions, communications strategies, and programs that increase compliance and lower costs.
ElizaLIVE is a multi-modal engagement platform that brings understanding of healthcare data to a whole new level. ElizaLIVE combines data from proprietary outreach on hundreds of millions of individual conversations about health care, taking in interactions from web click streams, email, and automated phone conversations powered by Eliza’s proprietary speech recognition engine. ElizaLIVE weaves this data with clinical data, third-party, and publically-available data to better understand healthcare consumers and create multi-dimensional profiles including socio-demographic, clinical, and behavioral inputs. ElizaLIVE’s proprietary score predicts how people will behave, specifically assigning individuals a number on a 10 point scale that predicts how they will respond to attempted interventions that would improve care and lower costs. It is not enough to stratify a population by how much they are likely to cost; ElizaLIVE shows whether individual members are likely to respond to an intervention, while creating meaningful interventions, communications strategies, and programs that increase compliance and lower costs.
